Register   |   Login
Issues

Volume 3

Volume 3

Why is Play important for children with disabilities and how can we factor in safety and accessibility to enable all children with disabilities enjoy these facilities.

What is available in your own backyard: your neighbourhood, school, nursery, kindergarten, and public places for safe, inclusive play that the whole family can enjoy together.

Welcome your input.
 
For information on inclusive play check out the Play for Life Symposium
October 23-24, 2010
Radisson Plaza Hotel Minneapolis, Minn., USA.
 
http://www.playlsi.com/Pages/Home.aspx

Play brings families, friends and communities together; it keep us fit and makes us smile. Research shows that play is a key element of development and health for individuals of all ages and abilities. Unfortunately, play is being threatened on every front in the U.S. It's seen as a "children-only" activity, if it's thought about at all. Furthermore, concerns around inclusive play are primarily discussed among disability experts and are not part of most community agendas.
 

Continue Reading

Racing on Four Wheels

In the days when his schedule was quite empty, he would turn to the internet to chat with his friends. It progressed to participating in forums and finally he started a blog. The World Wide Web was where is he met like-minded individuals with similar interests who soon became his closest friends.

It is obvious that friendship plays an important role in Chow’s life.

“It’s hard to meet friends with same interests, it’s even harder to meet real friends. Many are false. The world outside contains a lot of two-faced people with double standards,” his voice rang with unspoken hurt and regret.

That was why he felt lucky to have such a great group of friends who and non-disabled yet have accepted him for what he is.
He said, “I may be the only one in wheelchair, but I don’t feel any different. My friends take care of me and make allowances.”
“We will go as a group to Malacca or Genting for day trips and we also have our makan (eating) sessions. All of us are into cars, so we’re kind of an informal car club. They come from everywhere;Genting, Perak, Johor and so on.”

In fact, inaccessibility is almost a non-issue with him, because his friends are always there to lend a helping hand.

“But normally we’ll evaluate the place first,” he added.Moving on to racing, Chow recalled how his father used to take him to Batu Tiga to watch races.He said, "I have no interest in F1, as they have totally different standards, which I can say is unachievable.”Chow normally takes part in “Autocourse – the simplest and cheapest racing competition. All you need is just flat ground. This race focuses on technique. An ordinary car can be used, the other things you need are a helmet, bucket seat and seat belt.”

Naturally, as a car enthusiast and racer he has had his car modified.

“For safety reasons and more speed. Made the suspension harder too,” he explained.

His eyes shone with excitement when he talked about his dream car.

“It’s a Toyota worth RM750, 000,” Ted sighed.

When asked on how he bounced back from the accident so fast, he smiled and said, “Your life is in YOUR hands.”

It was a dark and stormy night. Ted Chow Thian Tuck was riding his motorcycle back home from the pasar malam (night market) where his parents worked. It was a distance of 5 kilometres, and he remembered feeling the rain on his face and wind against his chest. The next thing he knew, he woke up on a bed in a hospital.That was the start of a whole new chapter in Chow's life.In the Kuala Lumpur General Hospital (KLGH), Chow’s mother greeted him with the bad news; that his spinal chord sustained major injuries to the C5 and C7 sections, thus effectively making him a wheelchair user for the rest of his life.

“I was placed in a student ward. My mother said my spinal chord moved, and I had to undergo an operation to remove the crushed bones and insert wires. I spent four months in the hospital,” Ted relatef during the interview.

When his love for racing is brought up, the car enthusiast is quick to stress that subject and the accident is in no way related. “Besides, I was riding a kapcai motorcycle,” he smiled sheepishly.

After the accident, it took him two years to complete his SPM examinations. Following that he had wanted to do something for himself, to make his life worth living.

“Everybody wants to rise up again, it all depends if opportunity presents itself,” Ted nodded sagely.

His family is his main pillar of strength. They had the highest concern for him, and would help him with any incovenience.

“They gave me things to do so I wouldn’t feel useless. Previously I used to do handy work around my house. Then I worked in a factory dealing with electronic parts for one year. Unfortunately it went bankrupt, so I helped out my mother at her stall. Business was slow, I had almost nothing to do for a month. Now I'm working in a factory/ It’s been six years already,” he shared.

Ted is grateful for that, as he feels that today’s world is a tough place for the disabled looking for a job.

“Especially those with physical disability. It’s not that they don’t have their strengths, and many of them are looking for work. I feel that companies can help them by hiring.”

Continue Reading

2008 was a good year for Siow Lee Chan.

This pint-sized lady won a bronze medal for the Powerlifting Women Under 56kg category in the Beijing 2008 Paralympic Games. This was no mean feat considering that she just delivered twins, a couple of months earlier.

For her achievement, she was awarded Tokoh Orang Kurang Upaya Wanita (OKU) 2008 and was also bestowed the F&N Out-Do Yourself Award 2008. This award recognises individuals who rise above the call of duty to perform standout deeds ranging from promoting nation building to outstanding sports.

Fame does not come without a price though. Just one month after giving birth to twin girls she had to resume her intensive training.

“I was not able to take care of my children so I hired an Indonesian maid. Sometimes my children call me ‘mam’ like my maid does. It makes me sad. It’s one of my sacrifices.” The happy glow on her face is somewhat dimmed.

Besides her 22 month old twin girls, whom she absolutely adores, she spoke fondly of her husband, whom she married in 1999.
“Actually it was my husband who introduced me to powerlifting . I was never into sports what more powerlifting. I felt it was too ‘macho’. The big muscles scared me,” Siow giggled girlishly.

Siow revealed that she started training for the sport because she hoped to travel overseas for competitions.. However, when she won her first gold medal one year later, she began to be interested in the sports. Her friendly exterior belies the inner strength that she has. Perhaps it could be attributed to her tough childhood. After contracting polio at the tender age of seven, Siow lost the use of her legs.
During her secondary school days she loved going out. As her parents were working, her friends would take her out to the pasar malam (night market). One day she heard her friends arguing whose turn it was to push her wheelchair, as none of them wanted to.

“I was devastated. For a young girl who never thought her friends would be like that, how could I accept it?” her voice quavered ever so slightly with emotion.

She related that she did not have many friends in secondary school, only one very good friend who would buy food for her from the canteen or wheel her there.

“One day the teacher wanted to move my class to a classroom upstairs. But due to my condition the teacher changed her mind. I
Challenges chats with strong woman Siow Lee Chan about being more than just physically strong.

By Eileen See overheard a classmate said ‘I wish she wouldn’t come to school’.”

It is heart wrenching to hear that as a child Siow used to cry every night.

“Every disabled person has insecurities, even the non-disabled,” she said, with a shrug of her shoulders at recalling those memories. Now she urges other disabled people to be strong and independant.
It has helped her put her painful past behind her.

“I am very contented now as I have a family, house, and a career. It’s not bad considering I studied until Form 6 only.”

Life as a national athlete is not only about winning medals and awards. Siow has had her share of unpleasantness in the arena.

When she won the bronze medal during the paralympic games in Beijing last year, she had an injury in her shoulder.

“It was a muscle tear, which still hurts on and off. Sometimes I see a doctor. If it gets too painful I'll normally take medicine,” she added.

There is a story behind every injury. “In 2004 I was at my highest peak, when I was very motivated. At that time I did my own training, with help from my husband, who also takes part in powerlifting. A temporary trainer was engaged for me.” Siow grimaced at the memory.

“On the very first day he came I got injured. Athletes know their own bodies. But he kept insisting I lift weights in a way that I could not. He was overly pushy and made me hurt my hand, it was so bad I couldn’t even lift it up.” She added that an understanding coach is very important to elite athletes and is glad that her current coach is such a person. Siow said that there are currently eight full-time disabled athletes in powerlifting. “Disabled sports has improved much since then. Last time, athletes had to pay for their own transport to training sites or expenses like petrol and protein supplements.
Now the goverment gives the fulltime athelte allowance during training , and even compensates them with a salary allowance for the working para-atheltes who had to take time off their work to come for training everyday.

She said, “This means, we can focus more on our training and not worry about getting food for our children.”
So what’s her recipe for success?

A healthy dose of talent?

“I don’t know about talent, but I know that it’s not easy to be successful. A lot of factors need to be considered, like mentality,” Siow said earnestly.

“We have to play it smart too. Normally I’d watch the winners from other countries. Learn their technique, what is it that helped them win.”

Siow who had been in centralised training since last March, struck gold at the KL09 5th ASEAN Para Games held recently. The full-time training for five days a week from Monday to Friday certainly paid off when she not only won the gold but also set a new record in the women's 65kg category..

Continue Reading

Personality profile

COO of Bernama Radio 24

Sheikh Raffie Abd Rahman walking towards  success, his way.

Sheikh Raffie talks to CHALLENGES about parking and his insanely quick climb up the corporate ladder.

“My biggest grouse is disabled parking,” growled Sheikh Raffie Abdul Rahman, CEO of Bernama Radio 24. He once had to argue for disabled parking in JPM, even though his car had a disabled sticker.

He feels that it is due to a lack of awareness. “Though it’s less now, but most able bodied people think the disabled don’t exist. Look at Tesco – the disabled parking is full of bikes. Where are their brains?” he demands, hitting his calliper against the floor in annoyance.

“The disabled are VIPs – Virtually Invisible Persons,” he says sarcastically.

Clearly, Sheikh is not a man to mess with. The fact that he contracted Polio at two and has been wearing callipers or leg braces since he was three has not hampered him from walking the road of success.

Even with callipers, he walked a lot most of the time, especially during his university days in UK. “Of  course, I was much thinner at that time,” he laughed.

With good SPM results, he was eligible to study law in UK. However, having decided it was not for him, in his second year he switched to International Political Science and Strategic Studies. In 1996 he even represented Malaysia in the ASEAN Young Leaders Forum.

“I wanted to travel the world, so I thought, diplomat! A close friend of mine during my A-levels studied architecture. He is a diplomat now. I should have studied architecture,” joked Sheikh good naturedly.

When he isn’t being fearsome, Sheikh can be quite a jovial guy. Every inch of him radiates strength which stems from acceptance.

In secondary school he came to terms with the fact that he was disabled. “I was good with teachers, had good friends, was in the debating team and was even a prefect. I was the only prefect that was disabled. When I was called to take my tie and badge everybody clapped,” he recalled with a huge grin.

Upon graduation from UK he started working in Institute of Strategic and International Studies (ISIS) Malaysia. Much to his disappointment, there was no opening for diplomat positions.

Born in KL and bred in Johor, Sheikh’s parents who were working in Radio Television Malaysia (RTM) never encouraged him to get into broadcasting. However, at his insistence, his father informed him of an audition for news reader.

“Over 400 people went for that audition, and I got it.” He smiled smugly. “I had a fairly good voice, clear enunciation. Got it the lazy way, by watching TV.”

Thus started his career in the broadcasting industry. Sheikh started reading the prime time English news part time. He also did voiceovers for documentaries.

“That was in 1996 where I had to take two buses and a taxi from my house in Subang to go to work at ISIS. That was for six months.”

Sheikh then auditioned for a radio DJ position in Radio 4 and got it. After one year in ISIS, he resigned. In his hunger for more achievement, he did part time sub-editing in RTM.

“I came to work at 12 noon, prepared the news, read news from eight to nine. At 12 midnight I had my radio show until 3am. At four in morning I went home to sleep, then go to work again at 12.” He shook his head in disbelief at the memory.

In 1997 when NTV7 was launched, Sheikh was head hunted to be a newscastor and was sent to U.S. for training. “It was the height of my careeer. Journalism moves the world. I could change the way people think. I never liked journalism but I learnt to like it,” he confessed.

Sheikh climbed the career ladder rapidly. Due to his ability to read Malay and English news, he became the main anchor. Six months later he was promoted to senior news castor. One year later, he was appointed acting Head of News.

“I had no experience but had the drive. At that time I was still reading news and was going for meetings with Tun Mahathir. Then, I got a call from Channel News Asia Singapore,” he paused dramatically.

Turns out CNA was looking for an anchor from Malaysia. Later on he had a political talk show called Between The Lines where he got to talk to politicians live around the world.

“The money in Singapore was good, but I came back slightly less than two years. I was depressed because I was alone.” Sheikh declared himself a people person, who must have people around him. “Furthermore my girlfriend was in KL that time,” he wriggled his eyebrows mischievously.

Sheikh acknowledged that it was a crazy life, coming back to Malaysia to spend every weekend. So when the CEO of NTV7 contacted him about coming back, he was ready to talk business.

“I had a three year contract with CNA at that time, but they agreed to release me and NTV7 paid off my contract when they took me.” he disclosed.

As faith would have it, on his last day at CNA the September 11 event occurred. Thanks to Sheikh’s contacts in CNA, NTV7 was the first station in Malaysia to release the September 11 news.

Subsequently he was promoted to News Manager of NTV7 News. Then he moved up to Vice President of News.  With strategic thinking and excellent planning, Sheikh put himself in the good books by provding NTV7 with an edge over competitors. He was only 32 years old at that time.

He proudly states that he was the creator of the Edisi Siasat programme. “There were no strong investigative news programmes in Malaysia at that time. It was all fluff,” he explained.

Due to his refusal to get involved in internal politics, Sheikh jumped jobs. He then became an independant consultant for broadcasting stations. In 2007 he was brought in as consultant for Bernama.

The rest, they say,is history.

Continue Reading

Return To Work: Not Just Compensation

Eileen See spoke to Dr. Mohammed Azman bin Aziz Mohammed, Senior General Manager of Operations of Social Security Organisation (SOCSO) on his organisation’s latest programme for members - the Return To Work (RTW) programme.

A medical doctor by profession with nine years of experience in SOCSO, Dr Azman said said the main function of this programme is disability management through promotion and intervention to prevent  accident or disease.

“We provide rehabilitation to help injured workers go back to work. Basically, we are talking about prevention before rehabilitation and rehabilitation before compensation. Compensation can only give temporary financial support but not economic empowerment. We want injured workers to be independant and functional. So we have to get all interested parties to work with us to change mindsets, to have a paradigm shift,” he explained.

The RTW programme is new in Malaysia, though it has been practised in Australia for 65 years and in Europe for more than 50 years.

Why the sudden interest for Malaysia?

Dr Azman said, “Malaysia focuses so much on compensation and doesn’t look at the other aspect of rehabilitation. We should encourage our workers, not only compensate. We should look at the ABILITY and not the DISABILITY.”

The RTW programme was initiated on 15 January 2007 and has seen a success rate of 79% for the first six months of year 2009.

“We are looking at the insured person in total, not just at the compensation aspect. See if he can improve his ability prior to injury. For example if he loses one leg, we provide him with a prothesis and get him to walk. The compensation aspect is only to supplement the insured persons’ income until he is ready to return to his everyday duties.

After his injury he can go back to work, can earn a living to support his family. What SOCSO pays in compensation is not 100% of what he used to earn, it is always less. Compensation alone is not a total replacement of income. It only covers the loss of earning capacity. Seeing the current economic situation, compensation alone is definitely not enough,” Dr Azman stressed.

He added, “If an insured person goes for invalidity pension due to his illness, once certified invalid,  he can still work but cannot earn more than 1/3 of what he used to earn. If his earnings exceed this amount, the pension is stopped. The pension is only 50 to 60 percent of his drawn salary depending on the number of contributions the worker makes to SOCSO.” (The Employees’ Social Security Act 1969 defines salary at a maximum of RM3000.)

Dr Azman threw his hands up.

“So why should you go on 50% of what you used to earn, when we can provide rehabilitation programmes, vocational training, or alternative jobs and give you back your previous earning capacity?”

According to Dr Azman, the top five work-related injuries are musculoskeletal diseases (MSDs) which includes injuries to the upper or lower limb, back pain, shoulder or knee sprain. Followed by other occuapational diseases such as hearing impairment due to noise exposure, skin disease or irritation.

“SOCSO does have safety guidelines and health programmes. We work with NGOs to educate companies how to prevent accidents. So far, we have produced 10 videos on office safety, agriculture industry and also ergonomic practices. These videos can be purchased by companies, so their workers can be informed and protected.”

When asked about how SOCSO would determine if a case is genuine, Dr Azman nodded knowingly.

“In insurance business there are a lot of frauds. Here we always give the claimants the benefit of the doubt. If there is documentation, supporting medical reports, it is then taken as information to process and award compensation. However, if there are complains that the claim is not genuine, we will investigate.”

Vital question: Does SOCSO have an employees with disabilities?

“Yes, we have a Case Manager who is visually impaired, some of the senior management uses crutches and there are some employees with mental problems who are on medication. We have to set an example, don’t we?” Dr Azman gave a charismatic smile.

There are plans to expand the RTW programme nationwide, at the request of  Datuk Dr. S. Subramaniam, Minister of Human Resources.

Said Dr Azman with full enthusiasm, “We are going to employ 25 more Case Managers (currently there are 10) and expand to the whole of Malaysia. We also hope to get more injured workers who claimed for invalidity to come into this programme.”

Dr Azman also stresses a lot on employer support. “Companies do not see the value of experienced workers. They should retain experienced workers even though injured because new workers cost in terms of time and training for experience.”

What is the most expensive item SOCSO has ever paid out for under its programmes?
“Well, SOCSO has paid for a motorised wheelchair, which can cost up to RM9000. But the cost of the equipment does not matter, if we have to spend more money to help a disabled person be independent, that itself is a success.”

For Dr Azman, the glass of water is obviously half-full.
Any other updates besides the expansion of RTW? “There are plans for a rehab centre in Malacca which will be a one stop centre providing physical and vocational rehabilitation, components of case management and Return To Work in the same area. It should be ready by 2012.”

What is his take home message for today?
“We have to get employers and workers to understand this programme. It is not easy to get companies in. Many companies do not want to re-employ disabled workers. This, is our challenge.”

Continue Reading

Coverstory - Lifting more than weights

Challenges chats with strong woman Siow Lee Chan about being more than just physically strong. By Eileen See

2008 was a good year for Siow Lee Chan. This pint-sized lady won a bronze medal for the Powerlifting Women Under 56kg category in the Beijing  2008 Paralympic Games. This was no mean feat considering that she just delivered twins, a couple of months earlier.

For her achievement, she was awarded Tokoh Orang Kurang Upaya Wanita (OKU) 2008 and was also bestowed the F&N Out-Do Yourself Award 2008. This award recognises individuals who rise above the call of duty to perform standout deeds ranging from promoting nation building to outstanding sports.

Fame does not come without a price though. Just one month after giving birth to twin girls she had to resume her intensive training.

“I was not able to take care of my children so I hired an Indonesian maid. Sometimes my children call me ‘mam’ like my maid does. It makes me sad. It’s one of my sacrifices.” The happy glow on her face is somewhat dimmed.

Besides her 22 month old twin girls, whom she absolutely adores, she spoke fondly of her husband, whom she married in 1999.

 “Actually it was my husband who introduced me to powerlifting . I was never into sports what more powerlifting. I felt it was too ‘macho’. The big muscles scared me,” Siow giggled girlishly.

Siow revealed that she started training  for the sport because she hoped to travel overseas for competitions.. However, when she won her first gold medal one year later, she began to be interested in the sports.

Her friendly exterior belies the inner strength that she has. Perhaps it could be attributed to her tough childhood. After contracting polio at the tender age of seven, Siow lost the use of her legs.

During her secondary school days she loved going out. As her parents were working, her friends would take her out to the pasar malam (night market). One day she heard her friends arguing whose turn it was to push her wheelchair, as none of them wanted to.

“I was devastated. For a young girl who never thought her friends would be like that, how could I accept it?” her voice quavered ever so slightly with emotion.

She related that she did not have many friends in secondary school, only one very good friend who would buy food for her from the canteen or wheel her there.

“One day the teacher wanted to move my class to a classroom upstairs. But due to my condition the teacher changed her mind. I overheard a classmate said ‘I wish she wouldn’t come to school’.”

It is heart wrenching to hear that as a child Siow used to cry every night.

“Every disabled person has insecurities, even the non-disabled,” she said, with a shrug of her shoulders at recalling those memories. Now she urges other disabled people to be strong and independant.

It has helped her put her painful past behind her.

“I am very contented now as I have a family, house, and a career. It’s not bad considering I studied until Form 6 only.”

Life as a national athlete is not only about winning medals and awards. Siow has had her share of unpleasantness in the arena.

When she won the bronze medal during the paralympic games in Beijing last year, she had an injury in her shoulder.

 “It was a muscle tear, which still hurts on and off. Sometimes I see a doctor. If it gets too painful I'll normally take medicine,” she added.

There is a story behind every injury. “In 2004 I was at my highest peak, when I was very motivated. At that time I did my own training, with help from my husband, who also takes part in powerlifting. A temporary trainer was engaged for me.”

Siow grimaced at the memory.

“On the very first day he came I got injured. Athletes know their own bodies. But he kept insisting I lift weights in a way that I could not. He was overly pushy and made me hurt my hand, it was so bad I couldn’t even lift it up.”

She added that an understanding coach is very important to elite athletes and is glad that her current coach is such a person.

Siow said that there are currently eight full-time disabled athletes in powerlifting. “Disabled sports has improved much since then. Last time, athletes had to pay for their own transport to training sites or expenses like petrol and protein supplements.

Now the goverment gives the fulltime athelte allowance during training , and even compensates them with a salary allowance for the working para-atheltes who had to take time off their work to come for training everyday.

She said, “This means, we can focus more on our training and not worry about getting food for our children.”

So what’s her recipe for success?

A healthy dose of talent?

“I don’t know about talent, but I know that it’s not easy to be successful. A lot of factors need to be considered, like mentality,” Siow said earnestly.

“We have to play it smart too. Normally I’d watch the winners from other countries. Learn their technique, what is it that helped them win.”

Siow who had been in centralised training since last March, struck gold at the KL09 5th ASEAN Para Games held recently. The full-time training for five days a week from Monday to Friday certainly paid off when she not only won the gold but also set a new record in the women's 65kg category..

Her aim is to be able to compete in the next Paralympic Games 2012 in London, United Kingdom.

“My chances are there, however in any competition there is sure to be pressure. Sometimes in sports one just need luck,” she said as she resumes training after KL09.

CHALLENGES would like to wish Siow Lee Chan all the best, who not only lifts Malaysia’s reputation by lifting weights, but also lifts the spirits of all disabled athletes.

Continue Reading

Collegebeat - Hands-on at Berjaya University College of Hospitality

Chef Busky demonstrates as media participants, including SHABANA CASSIE PUNJAWANI try their culinary skills.

Located in the heart of Kuala Lumpur, Berjaya University College of Hospitality (BUCH) is a new  learning institution that specialises in Hospitality, Tourism and Services education.

It was indeed an eye-opener, to join BUCH Media Familiarisation Tour and visit this uniquely placed University College, offering programmes related to hospitality, tourism and services management from foundation to postgraduate levels.

Facilities available  include fully-integrated high-tech lecture theatres, classrooms, seminar rooms, dedicated computer labs, as well as state-of-the-art learning stations such as culinary labs, preparation kitchens, pastry labs, a bakery, a culinary theatre, a culinary studio lab, a coffee academy, a chocolate & sugar  artistry lab and many more.

Students would also get to practice the skills learnt at the gourmet café and fine dining training restaurant located on the 14th floor of the Berjaya Times Square, aptly named ‘Samplings on the 14th’.

One of the highlights of the tour, is the demo-cum-workshop themed “Budget Friendly and Healthy Spread of High-Tea Delicacies” conducted by the academic team from the School of Culinary Arts.

Led by the school’s director, chef Busky Baskaran Matthews, participants transformed a selection of convenience food within minutes into alluring high-tea delicacies, including Exotic Instant Canapés, Flavoursome Fish in Pockets, Choc-a-sponge, and Dainty Tiramisu Spoonies.Well, perhaps my creations turned out a bit wobbly but they sure were delicious!

Continue Reading

Mount Kinabalu Challenge

Ten special teens took on Mount Kinabalu in 2006, in rain, lightning and thunder. Four made it to the top. MARY CHEN writes.

110 intellectuallychallenged athletes from Brunei, Taiwan, Philippines, Australia, Indonesia and Malaysia is set to scale Mount Kinabalu (4,101 m) on April 18 for the event known as the “4th Special Olympics Mount Kinabalu Challenge”. This climb is organised by Special Olympucs Sabah to break the current record held by 61 special athletes who successfully reached the summit in 2005.

This news reminded me of my own trip in 2006, when a group of parents, climbers took ten special teens up Mount Kinabalu, in rain, lightning and thunder. Four of the teens made it to the top.

The view is certainly different from the top especially when you are on top of Asia’s tallest mountain peak. For Amirol Faiz B. Kamal Azwan, Muhammad Asyraf B. Hassan, Muhammad Haziq B. Mohamed Izmi and William Lim Wei Sheng from Selangor, it was certainly an unforgettable moment.

Mount Kinabalu, the highest mountain in South East Asia, is 4,095 meters above sea level. It is the place where you could see breathtaking sunrise from above the clouds, provided you can make it to the peak.

Our climb up Mount Kinabalu started on Tuesday, Dec 12, 2006. Ten special teens with ten supporting friends and three guides. We arrived at Timpohon Gate, the base of the mountain at 9am, collected our name tags, warmed up and were all ready to conquer this towering structure before us.

Ever changing. Mount Kinabalu is the mountain of tropical rainforest, colorful blossoms and golden sunset, and also dark and violent storms.

At times, a ghostly mist shrouded the mountain and it was easy to believe the local Kadazandusun’s claim that it is the homeland of their spirit world.

The trail to the highest peak winds along the southern side of the mountain. It is an 8.5km trek to the top. For most people, the journey takes two days. For us, we intended to take 24 hours.

Our first goal was to reach Laban Rata, where our organisers had booked our accommodation in advance. Timpohon Gate to Laban Rata is a climb of about five hours, but for some of us it turned out to be a much, much longer trek.

The day started warm and sunny and it certainly seemed like a picnic stroll, as we ambled slowly but surely up to the various checkpoints, seven shelter huts, with toilets and untreated mountain water storage tanks to fill our water bottles.

For full story, subscribe to Challenges here

Continue Reading

Artists with Autism 2008 Exhibition

In conjunction with the International Autism Awareness Month, the Parents’ Resource for Autism Malaysia (PR4A), a non-profit support group for parents with autistic children organised an art exhibition and fund-raising dinner to raise RM100, 000. In support of autism awareness.

The launch of Artists with Autism 2008 exhibition entitled “Awakening, Aspiring, Attaining” saw over 60 art and clay work done by over 15 children with autism on display.

“Awakening, Aspiring, Attaining”

“Art is a great channel of expression and the art pieces here in this exhibition are a testament to that. This event, however, is not only about autistic children but also their caregivers, be it the parents, teachers or medical professionals,” said K.C. Lim, President of PR4A.

“When these caregivers are armed with the right information and knowledge, they can then be stronger role models to influence and instill a sense of confidence and independence to their children. We hope that this will give children with autism a better quality of life and a brighter future,” he continued.

Simultaneously, both events are aimed at creating a strong network and platform to introduce the latest and most successful intervention programmers for children with autism locally. All funds raised will be

channeled to awareness initiatives, art camps for children with autism and to organise more workshops and training sessions to educate parents, caregivers, teachers and professionals on handling children with autism. The art exhibition which took place from April 20 to 26 at The Pavilion, Kuala Lumpur featured 60 paintings in various mediums and beautifully crafted clay works created by over 15 children with autism.

Paintings done by Yeak Ping Lian, 14-year-old artist with autism, were also displayed.

Yeak’s paintings went on display in New York and he received international recognition for his work.

Some of the masterpieces from the art exhibition at the Pavilion went on display at the fund-raising dinner on April 27, at Westin Hotel Kuala Lumpur. These items were then auctioned during the art auction which was one of the highlights of the dinner.

For full story, subscribe to Challenges here.

Continue Reading

 

Leonard Chua

The man who died twice 

At 24, Leonard Chua Tze Yeu had the world at his feet. The former air steward, bodybuilder, model turned-entrepreneur, was about to embark on a project and make his first million ringgit. On October 6, 2005, he drove up from his hometown in Melaka to meet a potential partner about his new business venture in Kuala Lumpur. Chua recalled, “My friend had passed my proposal to his analyst. He was quite keen, just waiting for his analyst to say yes. That day when the analyst was supposed to meet up with me, he suddenly called and said he had an emergency to attend to and didn’t turn up. That night, I met with an accident on the Federal Highway. It was 6th of October. There goes my ability to walk until today…” This is his story.

 

The accident

I met with an accident on the Federal Highway on October 6. It happened around midnight and I was admitted to UH (University Hospital) where I was awarded until March 2, 2006. The Honda CRV skidded and hit a tree opposite the Volvo outlet. That “stupid” CRV broke into two. I was very lucky that a civilian who lived nearby took my hand phone and dialled my last-called number. He called the ambulance as well. Luckily, that number was to my godfather, Fudge Foo, who stayed nearby and he was on his way back home then. Soon the ambulance came and it was quite a hassle to carry me out from the car as that CRV was a total loss, a wreck. I was bleeding all over. I broke my neck, fractured my lower ribs, broke my right leg, crushed my left ankle and injured my bladder. So I am paralyses from my upper chest down.

In medical terms, I am classified as a T1 complete high paraplegia. I was in the ICU (Intensive Care Unit) for one and a half months. I had cardiac arrest twice, once before the operation, and another time, in the ICU. When I was in ICU, I had all kinds of lung infection, yeast, bugs, etc.

My legs and my head had bedsores, due to lying down for too long, without changing positions. Then I was transferred to the ward to get further treatment and rehabilitation. I had problems with short-term memory, visual and speech problems and lost my math skills due to hypoxia (lack of oxygen from brain injury), caused by my two cardiac arrest. I “died” twice – this is my third life.

I could not even press the lift button at that time, I kept missing the targeted button.

I had nightmares almost every night.

Nevertheless, I am very strong and positive.

But I will not be what I am now without my parents’ help. They slept near my bed from when I was admitted until I was discharged.

I won’t be what I am today without them. I might’ve been dead.

 

My family, my support

This information is from my mother as I could not remember anything from the time of the accident until two months after the accident. I was in a very bad shape. I was on morphine all the time. I can’t help stressing that without my family’s support, I won’t be here. My maternal aunts and uncles rushed to the hospital, immediately after they received the phone call about me. Fudge Foo, the person who accompanied me in the ambulance called my second aunt. She is my mother’s second sister, and is my favourite aunt.

For full story, subscribe to Challenges here

powered by metaPost
Continue Reading

A group of mass communication students were assigned to write about a unique form of therapy available in the heart of Kuala Lumpur. One of the students, JEE MENG SZE shares her experience.

l-r Therapy session in progress

It was a fine Friday morning with bright sunshine. I have just reached the Royal Selangor Club located in Kuala Lumpur with the children from the Special Children Society of Ampang.

I was lucky to have the opportunity to visit the Selangor Polo Club to watch the children have their weekly horse-therapy, also known as Equine Assisted Therapy sessions.

I have always related the Polo Club with the sport of equestrian and horse riding, and have never heard of horse therapy before in my life, so this trip means a lot to me and by sharing my experience, I hope will create awareness and influence readers to support this as well.

Before the session, programmed coordinator Sandra Cooper briefed us on the benefits of Equine Assisted Therapy, the training and some ground rules we have to follow during the therapy programmed. We were not allowed to speak loudly or take photographs using flash as these actions might frighten the horses.

The special children were divided into three groups with four to five students in each group.

According to Sandra Cooper, equine assisted therapy combines therapy and fun - on a horse.

What is equine assisted therapy?

Interestingly equine assisted therapy is also called Hippo therapy. Hippo means horse in Greek, while the term “therapy” denotes curative treatment in a medical sense. Hippo therapy, therefore, means “treatment with the help of a horse”.

Horse therapy = horse and fun

Equine therapy originally started as a programmed that involved the use of horses in rehabilitative riding for individuals with physical disabilities. The horseback riding experience provided the rider with a gentle rhythm similar to the human gait; that often helped improve muscle strength, flexibility and balance. It has also been found that the individual forms a relationship with the horse that can help build his/her confidence, patience, and self-esteem. Horse therapy can help the individual achieve a variety of therapeutic goals, including cognitive, physical, emotional, social, educational and behavioral goals. Because of the varied benefits, horse therapy is now used in dealing with the following conditions, such as:

physical disabilities caused by neurological, motor and sensory disabilities, including rehabilitation and re-education for post stroke and trauma patients, psychomotor and cognitive problems-ADHD, developmental delayed, psychological and psychiatric problems, including depression, eating disorders, and persons with learning disabilities, including Down Syndrome and Autism.

After the second session of the equine assisted therapy programmed ended, I managed to have a short interview with Charmaine Chan, one of the special students from SCSOA (Special Children Society of Ampang). Charmaine is 19 years old. My first impression on meeting her was that she is active and talkative and indeed, a very cheerful girl.

Although Charmaine is a special child with Down Syndrome, but she behaves like any 19-year-old girl.. She likes to hang out with her school friends and enjoys meeting and knowing new friends from outside. Charmaine, who loves to sing, dance, act and bowl, enjoys her horse therapy sessions and would never dream of missing a lesson.

Charmaine lives with her parents in Kuala Lumpur. She has an elder sister named Jezzamine Chan , who is studying in Australia. Charmaine loves her sister so much and misses her all the time,

However, thanks to the advanced technology today, they chat daily through the

l-r Therapy session in progress 2

internet and can see each other with the webcam.

I really enjoyed interviewing Charmaine, as she is a girl who appreciates life and cherishes everything around her.

In fact the cheerful and happy smiles of the special children and the passion of the volunteers have made me change the way I see the world. I now feel there is more to life than just studies, getting a job and making money. I think we should all help others when you can and are able to do so.

Watching the volunteers patiently helping each child through the lessons, seeing how the children had gain a higher sense of self-satisfaction and confidence in themselves through the regular weekly sessions. I feel proud to have this chance to join them in this programmed.

According to one of the horse therapist, most of the horses here are from Argentina and a horse can cost up to RM30,000 each while monthly food expenses for a horse may cost from RM10,000 and above. It’s really very costly to maintain a horse!

RDA (Riding for Disabled) is now a worldwide organization and in Britain alone there are several hundred groups, with established similar Associations in the United States of America, Europe and Australia. Successful and growing groups in South East Asia are found in the Philippines, Hong Kong, Japan, Singapore, Thailand, Indonesia…and of course, Malaysia.

For full story, subscribe to Challenges here

layout for Horse Therapy story

Continue Reading

layout for Zainalabidin sings from his heart story

Entertainer and singer Zainal Abidin recently sang for a cause very close to his heart. He shares the experience with MARY CHEN.Driving into Forest Research Institute Malaysia, (better known as FRIM), from the concrete jungle surrounding it, was like driving into an oasis. However, on this particular day, I was not in FRIM just to enjoy Mother Nature and the cool, fresh air. I was there to meet a man with a mission. Zainal Abidin has chosen FRIM as the venue for the video clip he and his wife, Angelina Asmawi, intends to create with a group of very special children. In between his many takes for that four-minute production, I saw a different Zainal Abidin, from the savvy, charismatic side we usually see on stage.

Well, okay, he was still as charismatic; but he was also very patient and attentive to the children with Down syndrome surrounding him. When quizzed later, Zainal smiled and said, "I tend to be extra attentive, because they are so special to me and I have such fun with them." A parent himself, Zainal feels sad when he hears of parents who shy away from kindergartens attended by special kids and don't want their children to mix with them.

"I think that is a very wrong thing to do and you don’t know what you are missing.

zainal abidinHe added: "We need them as much as they need us. And while I am still here and able, I want to share, to laugh with them. It is not only good for them; it is also good for me. For me if I can make them laugh, it is such a wonderful sight, and today they make my day because I am with them." For Zainal, having kin with special needs is also why he feels so close to the children.

"I have one nephew and one niece with Down Syndrome. My nephew passed away at the age of three because of heart problems. He had a hole in the heart. My niece is 13 and needs a lot of care," he shared.

They may be born with some development issues, but as long as we can help them to be independent, teach them to take care of themselves, manage their own health and daily activities, they can also have a quality life.

Zainal and Angelina approached the Down Syndrome Association of Malaysia (PSDM) to see how they could assist the children. "We spoke with Dr Sharifah Zainiyah, president of PSDM a month ago. Dr Sharifah wanted to have a gala dinner to raise funds for their educational and independence programe.

The husband-and-wife team decided to use their expertise in entertainment and production, to help create a positive communication tool for the association. Zainal said: "We told her, we want to be part of creating awareness to help the special kids. We want the public to know in a very positive way that these children can be achievers. It is not impossible, but they need a lot of effort and help from us all."

"... let us come up with a video to create positive awareness...... "

Zainal Abidin with PSDM children  
A different approach

"We don’t want pictures of Down Syndrome kids just lying in the room, passive, doing nothing. We want to educate the public that a child with Down Syndrome can bring joy to a family. We want to show the happiness and love experienced by these families with a special child," he explained. The impassioned Zainal continued to elaborate on his mission. His aim is to portray happy friends and loving families. "That is the purpose. The idea came from me and my wife, and we are very proud of it.

What we want to show in the video clip are parents who have accepted their special kids as how they accepted their other children." Zainal hopes to reach out to new parents with the video, to tell them that you can be happy with your special child, if you take it positively. He observed: "Some parents are ashamed and sorok (hide) them and that is wrong. The more you expose them to society, the better they learn to socialise correctly and can be part of society.

That is why we are having the shoot in FRIM. They often do not have the opportunity to come out here and now when anyone talk to them about going to FRIM, they know because they have experienced FRIM for themselves. They see the rain, the big trees, the flowers and butterflies. Again, it is just giving them the opportunity to come out and gain good knowledge." There was one scene where two girls, one with special needs, meet and end eighth them putting their heads together and saying that they are no different from each other.

For full story, subscribe to Challenges here

Continue Reading

Journey with the Blind
Have you ever wondered how the blind make their way from place to place? Do they fumble or is there confusion? Read on with CS KHAN and find out for yourself.

pav2

Invite you, the reader, to take a virtual trip with me to a shopping mall in Kuala Lumpur. This is the first time I am visiting this particular mall, however, this trip is similar to the many trips I took on my own, and so I am not too worried.

A sighted person uses visual landmarks to guide him, while a blind person like me has to travel in “darkness”. Therefore, even if my destination is within sight, it is still out of sight for me. I rely on other senses such as smell, hearing, touch and environmental as clues for landmarks.

We shall start the journey from my home. I always take my white cane with me on a trip. But since I know this area very well, I shall leave it inside my bag. The rough tarred road is easy to differentiate from the smooth driveways and soft grassy ground adjoining it.

A few houses down the road is a tree with fragrant flowers. When I smell the flowers, I put up one hand to shield my face and duck my head to avoid knocking into a low branch.

A strong, distinctive smell drifts my way. I stop abruptly.

It is one of the resident’s Alsatian dogs.

The dog growls menacingly near my ankle. I backtrack, cross the road to avoid it and continue my journey.

There is a house across the road that I like to pass by. The smell of delicious cooking pervades the air every morning. Today it was the aroma of freshly baked bread.

Suddenly, the sun is beaming at me. I realise I have left the shade provided by the houses. This tells me that the main road is about 100 meters ahead. This road joins the main road at right angles, forming a T-junction. I take out my cane to search for the kerb. Found it!

I stepped onto the tiled sidewalk and continued my journey. I will use the cane from now on to warn drivers I am blind. Sounds of traffic can be heard now. There is not much traffic on the main road. More vehicles come from the direction of the suburbs and less from the town.

I crossed the main road when vehicles stopped on my side of the road. Then, I stand on the road divider and listen carefully for the sound of any vehicle turning out of the side road. I grip my cane anxiously. This is the dangerous part of the crossing. I was nearly knocked down a few times along this stretch. There is no sound of any moving vehicles so I cross over to the opposite side.

After a 20- minute wait, a bus rumbles to a stop near me. I board the bus and tell the driver, “Putra LRT station. Can you please tell me when to get down?” He keeps quiet. The door shuts with a hiss. I sit next to a passenger and ask, “Can you please let me know when the LRT station is near?”

“Ya!” he answers and coughs. After a short ride, my companion says, “near station, lah!” He presses the buzzer for me. “Thank you,” I reply and unfold my white cane, ready to disembark.

Tough being outside

In the station, I buy a ticket and use my cane to search for the entrance. “Enter here!” said a voice. I follow the direction. There is a security guard here who always lets me know where to enter. When he is not on duty, his colleagues never offer such assistance.

After boarding the train, I settle down in my seat. The train rumbles and squeals its way to my destination. I prefer to travel by train because an announcement of each destination is made.

Upon reaching my destination, I followed the commuters out of the station. Having lived here as a teenager, I can still remember the main layout of the area. However, much has changed. All the houses along the main thoroughfare are gone and have been replaced by skyscrapers and multi- storey shops. An avenue of huge old trees has since disappeared and the street has been widened. With the old landmarks gone, doubts started creeping within me. “Can I find this new shopping mall?” I wondered.

I stop a passer-by for directions. She replies, “I am going there myself. Why don’t you follow me?”

The quiet, laid back town of my youth has transformed into a bustling, noisy business district. The roar of traffic is incessant- rumblings of buses, growls of trucks and the swooshing sound of cars passing by. There is throbbing music blaring from shops, sizzling and crackling sound of frying, clinking, clanking sound of glass, porcelain crockery and cooking utensils.

“We passed by a shop where the fragrance of coffee blew in our direction.
‘Mmmmm, lovely coffee!’ I remark. ‘That’s The Coffee Bean,’ my guide replies.”

coffe2

For full story, subscribe to Challenges here

layout for  Journey with the Blind story

Continue Reading

 It Felt Like Flying!

“Intimate and ego-erasing was the combined effect. Comfortable and safe far beyond what I imagined could be possible for me as an aging ever-more-obviously-quadriplegic.” Scott Rains

Each morning I made the leap overboard. “It looks like flying,” piped a voice from the deck of the Sea Wolf somewhere behind me. It was like flying as I looked out at the glacier-studded mountains ahead and the glass-smooth Alaskan water of Glacier Bay around the kayak floating below me. It was a kind of freedom I never expected as I signed on to spend a week cruising on a wheelchair-adapted yacht with Waypoint Yacht Charter Services.

Strapped into a device that held me securely I was lowered – “flying” – into a tandem sea kayak. Some days, like the first one at Reed Glacier, immersed me in a passionately delivered course on biology, botany, geology, glaciology and the history of the Tlingit people. I bobbed in front of a glacier towering 10 stories above me as the articulate young naturalist, Sarah Betcher, paddled us expertly. Intimate and ego-erasing was the combined effect. Comfortable and safe far beyond what I imagined could be possible for me as an aging ever-more-obviously-quadriplegic.

Other days, like when we anchored in Tidal Inlet, I earned my 15 minutes of outdoorsman’s fame by spotting a pack of wolves – black, tawny, silver – five in all.

With seven passengers and four crew members the Sea Wolf was the perfect size for experiencing small-ship cruising. Built to hold 12 passengers in three wheelchair-adapted and three non-adapted cabins there was room to spare onboard and I enjoyed my solitary accommodations to the hilt. Simply opening the cabin door put me 32 inches from the sea on this retrofitted World War II minesweeper with decks widened and lifts installed for wheelchair-users.

Experiencing Alaska

To experience Alaska is to experience the earth revealing a majestic that only truly impacts you when you encounter it at the human scale of a small boat, kayak, or you own body.

Once, at Marjorie and Grand Pacific Glaciers, our flea-sized flotilla of kayaks glided past nesting puffins, cormorants, Bald Eagles, and endangered species of gull. We weaved through the ice floe shortly after sunrise to listen to what the Tlingit called “white thunder.” Those explosive cracks of gas release and the body-resonating reverberation of calving glaciers are a wake-up call.

The same call was evident on the faces of the small knot of passengers standing at least 15 stories above us on the promenade of a mega cruise ship that obliterated our view of the 5,000 year old river of ice succumbing to gravity and dragging mountaintops to the sea. Those passengers, turned away from the glacier, chose to vicariously enjoy our vulnerable rapture. They alone of the thousands of their shipmates spent that half hour with us their floating city-substitute left its carbon footprint over the fastest-receding glaciers in the world.

My morning meditation was for them – handicapped by their mode of transportation. It is one that has made neither the transition to socially-inclusive Universal Design in order to sustain them on a human scale or to Green Design in order to preserve the sacredness of place for seven generations and beyond.

I can think of only two words for the Tlingit grandparents who preserved this place intact; for the park rangers, residents and responsible tour operators who continue to do so; for my shipmates on the Sea Wolf who gave generously to allow me to experience it and for the cruise ship-bound congregation whose longing for wilderness intimacy freed them to engage in our morning meditation.

Those words are the only two I have learned in Tlingit. They are sufficient and all the more poignant for having been taught to me by a man I met on Seattle’s Skid Row caught up in that same longing when he saw me wearing the artwork of his people: “Gunalchéesh.”- “Thank you.”

 

# To take this trip or others on accessible sailboats and small boats around the world contact: Sherri Backstrom, Waypoint Yacht Charter Services (contact@waypointcharter.com) or visit its website at www.waypointcharter.com/accessible_travel.htm tel 888-491-2949 or 360-656-5934

* (Scott Rains is wheelchair user and sees no reason for the disabled to shy away from travelling. He can be reached at srains@oco.net or through his website http://www.RollingRains.com)

for information on sea wolf

For more stories, subscribe to Challenges here

Continue Reading

In life ‘blessings’ are necessary, for they make the business of living worthwhile.

For people with disabilities (PWDs) one such ‘blessing’ comes in the form of Persatuan Mobiliti Selangor dan Kuala Lumpur, a non-governmental organisation that provides the much needed transport service to the disabled community, at a dirt-cheap rate.

It is only befitting that Persatuan Mobiliti was awarded the Malaysia NGO Awards 2008 by Exxon Mobil, Yayasan Nanyang Press and The Resource Alliance recently. The award acknowledges and rewards organisations which are setting and promoting best practice in resource mobilisation, accountability and transparency.

Set up in 2002, Persatuan Mobiliti has six vans on the road, five of which are fitted with hydraulic lifts and a wheelchair restraint system, which enables wheelchair passengers to travel comfortably and safely. Of the six vans, one can accommodate eight people and is mainly used for passengers with disabilities such as learning disabled, visually impaired and those walking with aids among others.

Corporations either donate the vans or contribute money for the upkeep of these vehicles.

Zamani Hassan, 41, a driver of two years with Persatuan Mobiliti said it was his desperation to earn a regular income that led him to seek employment with the association. Today, however, Zamani relates to his job differently. It is more than just paying his bills. He sees it as a social obligation for him, giving him the needed sense of purpose to carry on. His van driver’s salary is barely enough to feed the family but still this father of five goes about his work with a smile on his face.

“I feel good because I am able to help, albeit in a small way. It has become more of a ‘kerja amal’ or work for a good cause for me,” he said.

Looking at his enthusiasm, CHALLENGES decided to take a ride with Zamani, seizing the chance to, one, to learn about the service provided by Persatuan Mobiliti and second, to let readers know how deserving of a helping hand Persatuan Mobiliti is.

For a mere RM6, users of this door-to-door transport service are picked up from their homes and taken to the respective hospitals for their check-up or to collect their supply of medicine. There are also users who use the association’s service to run errands, be it banking or shopping. Passengers are encouraged to use the service as a way to step out of their homes and go socialise with friends.

“We depart from office at 8am to fetch the first passenger from her or his house and take them to where they need to go. We then go off to ferry the next passenger and return later to pick up the first passenger to take them back home,” explained Zamani as he drove to Old Klang Road to pick up the first passenger for the day, getting caught later on in the traffic enroute to Kuala Lumpur Hospital.

With the aid of the hydraulic lift, the passenger is hoisted inside. Once on board the van, Zamani will fasten the belts to secure the wheels of the passenger’s wheelchair to ensure her or his safety.

“This is to prevent our passengers from losing their balance in case we have to apply the emergency brakes. Also, by fastening belts to the wheels, we make sure the wheelchair does not sway left or right during bumpy rides etc. It is always the passengers’ safety and comfort on our minds,” he added.

In the case of passengers who use the conventional wheelchair, extra effort is required to place them atop the hydraulic lift platform.

“Although our hydraulic lift is well secured to ensure passengers’ safety, we nevertheless are always alert to ensure they ascend and descend safely,” Zamani stressed.

Persatuan Mobiliti a boon

Indeed, the passengers certainly regard the transport service as a boon. They are charged a flat rate of RM3 irrespective of the distance travelled. In the last 12 months the association has helped disabled Malaysians make about 4,500 journeys to hospitals, clinics, rehabilitation centres and shopping complexes or to visit friends.

For Tham Lup Keng, a wheelchair-user of eight years, the trip from his condominium in Bukit OUG in Old Klang Road to Hospital Kuala Lumpur easily covers a distance of more than 20km, making it about a little over a 40km to-and-fro- trip. If Tham were to call for a taxi, not only would he have to pay a RM2 calling fee but the taxi fare for a one-way trip would certainly be over RM20. However, Tham said no taxis want to ferry wheelchair-users for they see the latter as a hassle.

Asked what he thought of Persatuan Mobiliti’s transport service, Tham replied:

“I find this van service very good.”

After having dropped Tham off at Kuala Lumpur Hospital, Zamani made his way to fetch 70-year-old Lee Eng Chong from his house in Batu 5, Jalan Ipoh. Lee had to go to Universiti Malaya Medical Centre, (previously known as Universiti Hospital) to collect his supply of medicine. Each time a passenger came on board, Zamani repeated what he did for the previous passenger i.e. lowering the hydraulic lift to the floor level to enable wheelchair-users to wheel their way atop the platform and be lifted inside where safety belts were fastened to prevent the wheelchairs from moving once Zamani hit the road.

The trip from Jalan Ipoh to Hospital Kuala Lumpur was about 15km and in terms of a taxi fare would have cost about RM20.

For full story, subscribe to Challenges here

Continue Reading

London, My Home Away From Home

 

by Eleanore D'orville

There have always been reasons for me to travel to London. I have done so 12 times, in my 24 years of existence. My maiden trip was in 1987 and then in July the following year. At times I travelled alone and sometimes mom accompanied me.

London is my favourite holiday destination for various reasons. One is that I have relatives there; my Nana (grandma), uncles and aunt. My uncle Donald and Nana reside in Ipswich while aunt Molly stays in Norwich and uncle Alastair and family are at Newcastle. So going to London is always fun, more so for Easter, summer holidays and Christmas.

I love my British kin very much especially uncle Donald who has been a father figure to me. It was he who “influenced” me into becoming a Manchester United (MU) fan, buying me the club’s jerseys and scarves. Uncle Donald himself is a staunch MU supporter. Thanks to him, I know all about MU and its players.

My favourite MU player is Cristiano Ronaldo, whose humble beginnings started in Funchal in Madeira, Portugal. Before MU he played for Sporting Lisbon, a Portuguese football team. In summer 2003, when MU played a friendly match against Sporting Lisbon, Ronaldo showed off his ability to play on both wings. Impressed, MU signed him on for 12.24 million pounds (MYR715.442 million). He made his debut for MU as a 60th minute substitute against Bolton Wanderers at Old Trafford (MU’s home base) and in 2005 was named FIFPro Special Young Player of the Year, the only award which is voted by fans. Ronaldo received the same acclaim the following year. He was also ranked 20th in the FIFA Player of the Year 2005 standings.

Football aside, London’s charm has always captivated me. Its appealing history fascinates me. I had studied London’s history in secondary school and enjoyed it thoroughly. I have been to the Tower of London, the Tower Bridge, Madame Tussaud’s wax museum, Buckingham Palace and have also witnessed the Horse Guards Parade several times. I can still recall how much I enjoyed feeding the pigeons in Trafalgar Square when I visited London in 1991.

In London, I rely on the London Underground as my main mode of travel. It is the world’s oldest underground system and is one of the largest in terms of route length. I use its service regularly, as it is fast and efficient. If I feel like enjoying the London scenery then I hop onto a bus. But most of the time, we spent our holidays walking down the streets of London. Walking, as I have found out, is the best way to see the attractions.

My latest trip to London was in August 2006, in what was a decision by mom “to kill two birds with one stone”. Mom wanted to celebrate her 60th birthday with her relatives and friends. While for me, I was thrilled about going to Old Traford to watch my favourite football team MU in action, playing its opening match against Fulham in the English Premier League.

What a day it was. We lost our way getting to Manchester and were so worried that we would miss the game. Although we saw a sea of people in MU jerseys making their way to the stadium we however had to find our hotel which was in the opposite direction to collect our tickets for the game.

Luckily, we managed to make it 30 minutes before the match kicked off, being able to grab a hotdog and rush for our seats. Outside the stadium, the atmosphere was nothing short of boisterous with everyone in their red MU jerseys eating, drinking and shopping for souvenirs. I felt so proud to be a MU fan.

For full story, subscribe to Challenges here

Continue Reading

AYA Dream Malaysia 2007 Awards

– Surpassing Boundaries By James Chua

William Arthur Ward once said, “If you can imagine it, you can achieve it. If you can dream it, you can become it.”

Becoming a celebrity was no dream of mine. But I got a little feeling of what being under the limelight is all about when I attended the 3rd annual Asian Youth Ambassadors (AYA) Dream Malaysia 2007 Awards ceremony last November.

That night at the Kuala Lumpur Performing Arts Centre (KLPac) in Sentul, Kuala Lumpur, I was accorded the red carpet treatment (never mind that I was covering the event for Challenges and not an awards nominee) and had the chance to mingle with the “movers and shakers” of society as well as the inspiring finalists at a tea reception held prior to the awards ceremony.

AYA and its dream

The brainchild of Kenneth and Sandra Chin, the AYA Dream

Malaysia project was launched 12 years ago to acknowledge the extraordinary achievements of ordinary Malaysians who had triumphed in the face of obstacles.

As such, its vision is “inviting, inspiring, instructing and involving young people to dare to dream and be responsible in fulfilling those dreams for the good of all,” said Kenneth.

The son of the late famous entertainer Mike Bernie Chin, Kenneth, a former lawyer, hopes to see Malaysia as a truly developed nation in terms of infrastructure and culture. He believes that the youths of today are more empowered to build a better Malaysia and through their selfless actions can rally their communities together.

Living the AYA spirit

The Most Outstanding Youth of the Year award is given to the person whose spirit and community actions epitomize the AYA virtues. The winners of the 2005 and 2006 awards, Yvonne Foong and Sia Ling Ling respectively are exemplary in that despite their physical disabilities, they had chosen to soldier on and encourage others to believe in their dreams.

Foong has neurofibromatosis type 2, a disorder associated with tumour growth in the nervous system while Sia was born with muscular dystrophy and is wheelchair-bound. Foong was a presenter while Sia performed at the award ceremony.

The nominees for the Most Outstanding Youth of the Year and Most Youth-Friendly Company of the Year categories were selected from entries and public votes via SMS. Last year’s award saw 14 finalists including Jessica Mak Wei-E, who is Deaf, for the former category while five companies were in the running for the latter category.

The winners were each presented a durian-inspired trophy (the durian fruit is a metaphor for perseverance in achieving one’s dream in the face of seemingly impossible circumstances) and other prizes including a Nokia mobile phone. KLPac’s Pentas Seni was the designated venue for the 2007 awards and indeed it provided the right setting for the glittering event.

Of stars and bright lights…

In the company of guests decked out in their fine suits and elegant dresses, I felt terribly awkward as I stumbled onto a red carpet at the KLPac entrance after alighting from a taxi.

Camera flashes went off, leaving me momentarily dazed. My eyes gradually adjusted to the warm inviting lights that lit the way as I made my way along the red carpet.

Before me, Pentas Seni stood towering with ceiling-high glass walls and soft lighting at every nook and corner. It was like an Oscar awards night where all the stars walked on this important red carpet, escorted to the reception area in the main auditorium where they enjoyed light refreshments and mingled with fellow guests before the curtains went up.

For full story, subscribe to Challenges here

Continue Reading

When Defiance Proved ‘Costly’
By Bathmavathi Krishnan

It was between stubbornness and throwing caution to the wind. Spurred by the will to carry on despite the odds and obstacles along the way, many a times I had disengaged common sense to get to where I wanted to. But in one recent outing, luck was not on my side. And it came with a price!

Just recently in March, I was all excited when I heard that a speakers’ club I had joined was having its first meeting.  “The meeting will be held upstairs, we cannot find a more suitable accommodation at the moment, but we would love to have you attend!” went the invite. Though I was half-hearted initially, the drive within me finally overpowered all reason and logic.

I said, “OK, I’ll be there.” After all, I have been hoisted up by “human lifts” all through my 33 years in a wheelchair to attend wedding functions, to give talks, attend dinners, etc. held in lift less buildings. So why not?

Arriving at the said venue, I found myself before five flights of stairs. At the thought of having to scale these stairs, my heart sank.

A few of the members were present to lend a helping hand. I gave them strict instructions, as I have always done in the past, on how to carry me with my wheelchair upstairs. I told them exactly which part of the wheelchair to hold, the angle of inclination while ascending, the pace with which they should move etc. And that they should put down my wheelchair at each landing before the next flight.

They did alright for the four flights, while all along I feared for dear life. At the last landing, with one more flight to scale, one of the volunteers felt tired and went to look for a replacement. When ­this new chap came down, he immediately grabbed my chair from the back and lifted it, oblivious that the rest were not yet ready. I did not see him either, as my back was towards him. The chair tipped forward. Being paralysed from the waist down, I slid out of the chair. The gentleman in front of me tried to hold me up by supporting my shoulders, but it was to no avail. The weight of my upper body gradually brought me to the floor with my left knee reaching first, which made me lean towards the left before supporting myself with my hands. The impact was absorbed by my left thigh bone (which became apparent only much later).

Within minutes, those around helped me back into my “seat”. I was a little shaken by the incident but remained composed. Thankfully, we managed the final lap to the floor where the meeting room was.

Once I was comfortably settled, I quickly inspected my knees, the thighs and shin with my hands to check if there was any warmth or swelling. Everything appeared normal. There was nothing to worry about. I went on to participate in the meeting and its activities. Once I got home, I once again examined my legs. There was nothing abnormal; no swelling, no warmth or redness. Satisfied, I went about my daily routine, transferring from wheelchair to bed, toilet and back. I slept well. The next morning I discovered a slight swelling just above my left knee. Thinking that I might have sprained my knee due to the fall, I secured it with a crepe bandage. And I had this bandage on for the next couple of days, removing it only when I showered.

I went about my daily life, which involves a lot of transfers – from wheelchair to car, on to the bed, toilet seat, bathing seat, etc. The swelling became worse after a couple of days. I did not feel any pain over the knee area, but felt restless and uncomfortable at night. I swallowed a couple of painkillers before sleeping. The following day, I decided to have the swelling examined.

I called a dear friend, Dr Zaliha Omar and gave her the symptoms. She screamed – “You just wait there – don’t move your leg; it sounds like a fracture! I’ll come over and get you to the hospital”. I told her I had done all the movements – mainly lateral movements! Within a few minutes she arrived and took me to the University Malaya Medical Centre where I had an X-ray taken.

For full story, subscribe to Challenges here

Continue Reading

 When Understanding
                Leads To Acceptance

When I was asked to take a class of college students pursuing a course in photojournalism last November, I decided it was a golden opportunity to introduce them to their peers with disabilities. By Mary Chen

 

 

As the song The Greatest Love of All goes: ‘I believe the children are our future, teach them well and let them lead the way….”

At CHALLENGES, we believe one way to build a more caring future generation of Malaysians is by supporting youth-focussed projects that sensitise Malaysian youths to disability issues. Acceptance of another person’s individuality only comes with understanding and learning to communicate with one another is the first step in that direction.

So one Thursday morning the mass communication students from Dasein Academy of Art turned up at the Society of Families of Person with Learning Difficulties or PERKOBP in Puchong, Kuala Lumpur.

These students were tasked with taking photographs and write either an article about the centre or a personality piece on the trainees who are teenagers with learning disabilities.

Not surprisingly, many of the students have had no contact with people with disabilities prior to this assignment, simply because they had no reason to in the course of their daily lives. A few of the students panicked, asking me anxiously when faced with their special peers: “Must I talk to them?”, “What do I ask them?”, “Will they know how to answer me?”, “How do I talk to them?”.

I answered them with reassuring smiles and words and sent them back to the centre. As a facilitator, I can only set the stage and/or offer some guidelines but in the end it would really depend on the students’ own efforts to complete their assignments.

As a advocate for disability equality, it was encouraging to see the two groups of young adults warming up to each other, eventually.

Below is what the students had to say of their first-ever experience meeting PWDs.

 

 

Savouries from PERKOBP

By Low Bee Sin

 

When I first stepped into PERKOBP, I was attracted by the aroma from the bakery. Inside, there were two people making siew pao. I was really impressed because of the delicious smell that had everyone crowding inside the room.

Peter Phang, president of PERKOBP, gave us a briefing about the society. He said the society’s main aim is to equip their children with useful skills to let them achieve independent living. They have four main projects, namely Laundry project, Group Home project, Bakery project and Organic Farm project.

The trainees work from 9am to 4pm. They have salaries which they spend by themselves. When chatting with them, I felt very touched and happy. One of the trainees told me that her parents had passed away and that tomorrow it would be her birthday. She is happy because her friends at PERKOBP will celebrate with her. I admire her tough optimism and hope she will have a better future and be happy always.

 

 

Give The Disabled Child An Opportunity To Be Independent

By Wong Kai Hang

 

Parents need to understand that as the child grows up, there is a real need to allow him to take charge of his own life. How long can the parents be there to protect the child? What will happen to the child after the parents are no longer around?

Parents who really care for their disabled child, no matter how old the child is, should let the child learn to live independently. The parents should not just feed them but more importantly teach them survival skills because parents simply cannot be there forever. They must be taught skills to live independently and carry out their daily activities. That confidence will in turn empower the child to take charge of her or his own life, be responsible for their own actions and learn to be independent.

PERKOBP or Society of Families of Persons with Learning Difficulties, is a support group formed in early 1992 by a group of parents’ who were concerned with the welfare of their children who had learning difficulties. The society runs a centre with sheltered workshops for trainees with learning disabilities in Puchong, Kuala Lumpur. Although they are learning slowly, sometimes having difficulty in understanding and following instructions, yet they can still work and complete their tasks.

At the packaging workshop, you can see the trainees busy doing their work. They have their own work areas and responsibilities. You can even see the punch card machine where they clock in and out of office.

PERKOBP runs a few projects at the centre. The Laundry project teaches the trainees how to run a laundry service. You can also see the bakery, with the ovens and the trainees learning to bake. There is also an organic garden to provide additional outdoor activities for the trainees, especially those who cannot sit still for too long. The garden produces organic vegetables and the produce is sold to members and their families.

For full story, subscribe to Challenges here

Continue Reading

Hitting the High Notes in the Big Apple

A Malaysian paralympic pianist performs at the United Nations Dag Hammarskjöld Auditorium and Carnegie Hall in New York. HENG LEE CHIN is still entranced by her experience as she pens this article.

When I received the invitation to perform at the United Nations and Carnegie Hall in New York from Professor Tokio Sakoda, President of Institute of Piano Teachers & Disabled Research Association (IPD), Japan, it just seemed so surreal.

Honestly, I could not say which performance claimed first place in my heart, having a presence, and a voice, at the United Nations on International Day of Disabled Persons, or performing at Carnegie Hall, where the most famous and talented musicians have stood.

The demonstration concerts featured 24 participants from eight countries -- Japan, Korea, Taiwan, France, Poland, Spain, Malaysia and the United States. Only participants at the 1st Piano Paralympics Festival in Yokohama were invited to take part in the concerts, which was why I was invited.

Touching down in New York

As usual, I chose to depart from Singapore’s Changi Airport, which was closer to my home in Johor Baru, than flying from the Kuala Lumpur International Airport (KLIA).

We had left Changi on December 1 at 6.50am and landed in New York 24 hours later at 5.30pm the same day.

Most of the participants had already arrived at Holiday Inn, Fort Lee, the hotel where we were put up for the next six nights.

By the time we checked in, we were so hungry we proceeded straight to the hotel restaurant for dinner, where we caught up with old friends from the 1st Piano Paralympics Festival. It was also a time of “I know we should have met before in Yokohama but may I know your name and where you come from again?”

The next morning, a briefing on the schedule for the next five days was given in Japanese! Not to worry, though, as Japanese/English interpreters were on hand to help the non-Japanese speaking participants. Interestingly, the volunteer interpreters, some of whom were mommies and daddies now, are ex-students of Professor Sakoda.

Sakoda may have been teaching piano in Japan for 40 years, but his ex-students are located all over the world and it amazes me how he has always been able to get them to volunteer as interpreters and co-ordinators at such disability-related concerts in different parts of the world. 

Participants were given an hour of practice session every day at Jimbo Studio, a 10-minute bus ride from the hotel. A shuttle bus with lift was available every two hours from the hotel to the studio and back. All we had to do was make sure we caught the bus according to our practice schedules.

Jimbo Studio is a small, cozy house converted into a studio with at least two pianos in each room. Except for the three steps at the entrance, all the houses in the area looked the same, with a lovely stretch of white-picket fences.

 United Nations International Disabled Day concert (December 3)

We arrived at the gate of the United Nations at 2pm. Wheelchair-users were taken to another gate at 42nd street for easier access to the concert stage. And for those of you who have visited United Nations, yes, even performers have to go through tight security too. Rehearsals were arranged according to the performance order. After rehearsals, my mother and I visited the UN gift shops with Ms Sonoko, one of Professor Sakoda’s students, and to our amusement, almost all members of the group were there too!

A reception was held at 6pm, and 30 minutes later, the concert started. It was not open to the public; only representatives from the media and United Nations were invited. As the auditorium is quite small without a backstage for performers to wait in, all of us sat with the audience when not on stage. Though it was freezing inside the hall, the human contact and heartwarming response from the audience made us performers feel so appreciated. It was definitely not just another concert that had people going home unaffected.

After the concert, we headed straight to a Chinese restaurant in downtown Manhattan as we were quite famished then. We were tired as well.

Finally, after what seemed like 10 or 12 courses of American-style Chinese food, we were dropped off at the hotel.

My practice session on the fourth day of arrival was at 5pm. We were briefed a day before about the two programmes that we could participate that day. I knew I would not be able to wake up to catch the 8.30am bus for a talk on music therapy at New York University, so I put my name for the 2pm programme on Method by Professor Robert Pace of Julliard School of Music.

In the evening, we were taken to an Italian restaurant in southeast New Jersey that offered a superb view of the neon lights of Manhattan overlooking the Hudson River as well as great Italian cuisine.

 Carnegie Hall (December 5)

The performers’ schedule was similar to that for the UN concert so we had two groups of people going different ways. The first part of the concert was at 1pm, and the second, 7pm. Half the group left for their preparation in the morning while the second half, including yours truly, were again taken to Jimbo Studio for practice before heading to Carnegie Hall. Our morning call came really early that day, at 6.30am.

We arrived at Carnegie Hall shortly before the first group started performing. We sat with the audience and the experience of being inside the hall, hearing such beautiful notes coming from the magnificent piano and seeing the talented and passionate performers on stage was incredible.

As soon as the concert ended at 3pm, the second group of performers were lined up for rehearsal. It was a tight schedule that ended with a short siesta backstage and a makenouchi bento (Japanese lunchbox) meal before the concert started at 7pm.

Was it just me or did it affect all performers at this prestigious hall? I felt Carnegie Hall brought out the performer in us; we were all definitely not professional or seasoned performers, in fact, many were students. However, the tension backstage was so thick, you could feel it in the air and it made us feel that nothing but the best was expected of us. And everyone gave of their best.

After the final curtain, we were awarded certificates of merit. As cameras were not allowed inside the hall, the certificates were precious keepsakes to remind us that we had really performed at Carnegie Hall.

The next two days after the concert was a time for us to wind down. After the hard work of the past four days, we needed a break physically, mentally, and gastronomically! (we had been having sandwiches for lunch every day and were looking forward to a change in menu).

Our organisers had planned a full programme for us, starting with a six-hour sightseeing tour that included Manhattan, where most of the famous landmarks are. Passing by Central Park and the famous 5th Avenue branded stores, our first stop was the Empire State Building.

We were taken to South Street Seaport for lunch. By then, it was already 2pm. The Seaport gave a good view of Brooklyn across the Brooklyn Bridge and had a food court that offered a variety of Mexican, Chinese and Japanese food.

When we made our way back to 5th Avenue, the traffic was so bad, thanks to the holiday crowd, that we did not have time for shopping as we had to be back at the hotel for dinner by 7pm.

It was a letdown to everybody and even though I could not afford to shop at 5th Avenue anyway, I had been hoping to see the big Christmas tree at the Rockefeller Centre. We were lucky we had a wonderful driver who took the bus round the area again to let us see the Christmas tree lights come on.

We had our last supper at the hotel. Some participants had already left for the airport, while others were going off that night or early the next morning. Dinner was mainly sandwiches again but this time, we were too busy exchanging e-mails and taking photos to notice the food.

All good experiences must come to an end and so at 5am on December 7, my mother and I got into a cab for Newark Liberty International Airport.

A note on the cab service, from Newark Airport to anywhere other than Manhattan, it is quite hard to hail a taxi with wheelchair-lift unless you can call a cab from Manhattan. I am not sure how much that would cost, but be sure to find out about cab services before landing at Newark Airport as free airport shuttle or air-trans services only go to Manhattan.

For the full story, subscribe to Challenges here

Continue Reading

People With Disabilities an Untapped Market for Tourism Industry

 

Accessible travel, barrier-free tourism, inclusive travel, tourism for all. Whatever you call it, the fact remains: travellers with disabilities and older persons with money and time to spend are expecting a wide range of travel options today. DR SCOTT RAINS discusses its impact on tourism trends.

 

TOURISM for people with disabilities is big business and the travel, hospitality and tourism industries, governments and even Disabled People’s Organisations (DPOs) are cashing in on this global trend.

You can even break it down into specialties – travel for slow walkers, dialysis cruises, senior citizen travel, medical tourism -- niche marketing is profitable.

 

Where did this “sudden” interest come from? It turns out that it’s not so sudden after all.

Just last year, two international accessible tourism conferences were held to full participation. The three-day Second International Conference on Accessible Tourism (ICAT 2007) was launched in Bangkok on November 24 just as a similar conference, the European Network on Accessible Tourism (ENAT), was ending in Spain.

ENAT, held from November 19 to 22, addressed the issue of accessibility and inclusion of travellers with disabilities. More than 200 representatives from international disability organisations, tourist boards and private enterprises came together for the event. They agreed unanimously that accessible tourism is the fastest-growing business opportunity in the tourism industry.

 

A growing market

United Nation estimates there are 650 million people with disabilities worldwide; with a significant portion of them, travellers with special needs.

The European Disability Forum estimates that there are some 50 million people with disability in Europe. Take into account the fast-growing population of people aged over 65 and the fact that those with disabilities rarely travel alone, and the market for accessible travel nearly trebles.

A recent study by the University of Surrey in England estimated that 127 million people, or 27 per cent of the European Union population, would benefit from accessible tourism, and that this niche industry has an estimated value of 80 billion euros (RM383 billion) per year. That figure doesn’t include pregnant women, families with young children and, vitally, travellers from the United States, Australia and the rest of the world.

So creating accessible cruise ships, accessible ship terminals, accessible ground transportation, and accessible tourist destinations is not charity. It is good business

 

Shortly after, Eric Lipp, founder of the Open Door Organisation in Chicago, United States began the first of his biennial surveys of the consumer power and travel behaviour of people with disabilities. Perhaps because the figures were so astounding it took a few years for their impact to be felt on the industry. Now it is well known that adults with disabilities in the US spend an average of US$13.6 billion (RM45 billion) annually on travel.

Lipp’s study found that the 42 million disabled travellers in the US take 31.7 million trips a year, and spend RM45 billion annually. Major areas of spending include RM11 billion on airfare, RM14 billion on hotel accommodation, and RM8.8 billion on food and beverage. In addition, adults with disabilities patronise restaurants about once a week, and they account for RM114 billion in annual revenue for restaurants.

The Disability Travel on the Rise Despite Barrier to Access research found that the number of American travellers with disabilities has increased by 50 per cent since 2005. The number of European travellers with disabilities has also increased, from 134 to 267.9 million.

 

Money, as they say, talks – and people have begun to listen.

ICAT 2007 had delegates from the United Nations and Thai government, faculty members and students of numerous universities as well as representatives of the travel industry as participants.

They were there to listen while experts with disabilities presented a strong case for promoting accessible tourism in the region.

Speaker Aiko Akiyama, Social Affairs Officer at ESCAP, the UN Economic and Social Commission for Asia and the Pacific said:

“In ESCAP region, there are at least 400 million people with disabilities and a growing number of older persons. It is reported that 400,000 people used wheelchair rental services at the Hong Kong International Airport in 2006”.

This conference, at the United Nations Conference Centre, is organised by the ESCAP in cooperation with the Ministry of Tourism and Sports and the Ministry of Social Development and Human Security of Thailand, Bangkok Metropolitan Administration and Disabled People International Asia-Pacific.

 

For me, the conference was the completion of two years of planning that began through contact with Eden International. They, together with the Asia Pacific Disability Forum, had been pursuing the topic of disability and tourism from the perspective of development. This is similar to what we are doing at the Inter-American Institute on Disability and Inclusive Development but the Asian context brought in a new set of partners, issues, and competencies.

 

This was timely as a recent UN survey found that by year 2050, the numbers of ageing population will rise to 2,000 million and 54 per cent of them live in Asia and the Pacific region.

Thailand has realised the economic potential of accessible tourism and the conference was a powerful catalyst fuelled by the sheer geographic size and cultural diversity of Asia.

The immediate results in Thailand are also encouraging to me.

After the conference, accessibility expert Duangdao Thaikum and I assessed Pattaya, which is fast becoming a destination of choice for travellers with disabilities.

 

We enlisted the Pattaya Expat Club and RollOn Travel, an organisation specialising in accessible tours worldwide, to help us with the accessibility audit. Jan (Budsakayt) Intarapasan, a teacher in design at King Mongkutt’s University in Bangkok, and I did an accessibility audit of Ayutthaya, the Thai heritage city north of the capital. Jan and I will speak together on accessible tourism at Southeast Asian heritage tourism sites during the upcoming i-CREATe 2008 conference in Bangkok.

(i-CREATe 2008 is the 2nd International Convention on Rehabilitation Engineering & Assistive Technology, to be held from May 13 to 15, Bangkok.)

 

Two years ago, a group of disability travel advocates got together and began to plan for today. Then it was easy to report on trends in accessible tourism. The pattern was clear. The trend in 2005 was experimentation and local standardisation in controlled regional environments.

 

New “islands of innovation” were evident around the world. In fact, in most cases, they were either actual islands like Crete, Hawaii, Tenerife, Japan, St John’s Virgin Islands, and Tasmania, or they were geographically isolated regions like Western Australia.

The trend in 2007 is less about new invention and more about standardisation across larger areas and on an international level. It is a new stage of maturity but it will be over in about two years when we meet next in Singapore – this time with our European friends. Singapore is hosting the International Conference on Accessible Tourism 2009 (ICAT 2009).

Right now, we will continue to establish common practices and standards.

Sometimes it will feel like a tug-of-war; pulling in two opposite directions: one direction pulls toward a rights-based approach to standards and the other a profit-based approach. The first starts with persons with disabilities as citizens; the second, as customers. The first approach speaks in the language of governments; the second, the language of business. Effective standards result when people with disabilities are active in defining both approaches.

In fact, that is what ICAT is about. It is a voice of people with disabilities in conversation with government and business to serve the interests of all three groups regarding travel and hospitality.

For full story, subscribe to Challenges here

Continue Reading

My Voting Experience

 

Malaysia held its 12th general election last March 8, 2008. Malaysians from all walks of life, including Malaysians with disabilities made a beeline for the polling stations to exercise their right to vote. Some voters with disabilities shared their voting experiences with CHALLENGES.

clip_image002

Sia Siew Chin, (pic) Executive Director, Beautiful Gate Foundation For The Disabled, Petaling Jaya:

I wheeled myself to SJKC Puay Chai to cast my vote, together with six of my wheelchair friends. There is a step before we can reach registration counter to check which room we should go to. This is not a big problem because SPR staff were there to help.

Another friend and I were arranged at ground floor, but four had to go to 1st floor. At first, SPR staffs wanted to carry them up, but finally gave up because of their size and there were too many people.

They came up with another solution. They collected my friends’ Mykad and got the ballot papers down for them from 1st floor. They “borrowed” another room on ground floor for them to mark down their choice, and helped take their ballot papers up to 1st floor and put into the box.

 

Blind voter Zahari Hashim:

I went to cast my vote at Brickfields. My 15-year-old son accompanied me.

After handing my Mykad to the officer, I was told that I am to cast my vote on the 2nd floor

One of the officers escorted us to the 2nd floor. After the officer at the counter announced my name and serial number, my son led me to the booth. He then asked who I was choosing. He then deposited the ballot paper into the box. We then left for home. I thought my son will not be allowed to cast for me as he is not a registered voter yet. Luckily everything went smoothly.

 

Lecturer Naziaty Mohd Yaacob:

I went at 4 pm and there were only two ladies in front of me, so it was a quick one. I noticed elderly people came at that time too. They looked like they needed assistance,… walking very slowly.

My ticket says “saluran 6” or line 6. I walked there to be told that line 6 was not there “and probably at another polling station”. I had to walk back to the staff manning the computers for the correct line. They should not confuse us.

I have arthritis due to polio and have problems walking with my crutches for too long.

I managed the 200 metres to and back to vote from the front gate (I was lucky to get a parking spot there). I did not bring my wheelchair because I did not know the barriers ahead.

 

Janet Ng, mother of 24-year-old blind musician Colin Ng:

Colin was all excited that he was taking part in the election for the first time. We went there after his work so we could avoid the queue.

Since we went in the evening, it was a breeze getting into the balloting lot. However I did not find the system very logical. My vote casting was at ground floor. I am sighted, able-bodied and not so old! However, my dear Colin had to climb upstairs to cast his vote. Isn’t that strange - my blind young man must climb the stairs to vote while I can easily do mine downstairs. Of course Colin had the advantage of a mother to help him but definitely the SPR needs to review their system by including the needs of various people with special needs.

 

Blind voter Hashim Ishak:

Here is my experience. When the polling station head said I could not bring my wife along to cross my ballot papers... I asked him, ‘why not?’ According to the EC rule, the disabled voter is allowed to have their spouse to cross the ballot paper for them. He then allowed me and said he wanted to help me cross the ballot papers but I insisted that my wife should do it for me because I wanted to exercise my right with the knowledge that my trusted spouse has voted for me. When my wife finished crossing the ballot paper. She guided me to the ballot boxes and I myself put in the ballot papers into the boxes, one for the parliament and the other is for the state assembly seat.

 

Moses Choo Siew Cheong, assistant executive director, National Council for the Blind, Malaysia:
As for Brickfields, everything was done on ground level. I just voted. No problems at all. The people there were very friendly, even the police.

Associate Professor Dr Tiun Ling Ta, President, Society of the Orthopaedically Handicapped, Malaysia, (POCAM)
Just back from voting at SMK Bukit Jambul, Pulau Pinang. No wheelchair provided. First you have to climb 4 flights of stairs to the higher ground and then climb the stairs to the first floor where the polling station is. How can the disabled exercise their rights in this situation?

 

Freelance writer Bathmavathi Krishnan, 53, I voted at La Salle Secondary School, Jalan Gasing, Petaling Jaya.

My first obstacle was crossing a small drain to reach the registration counter; and there was a small step immediately after the drain with no grating. Three people had to help me across it. The staff at the registration counter was helpful, but I had to cross the drain again and go down a slope to reach my polling room located in another building block. There was a step preventing me from entering the classroom for my line and I had to be helped across this. The school as a public building has to be accessible. There may be students or teachers with disabilities or who may become disabled temporarily due to sports or related accidents

 

 

On ways to improve the voting process for people with disabilities and the elderly:

Lecturer Naziaty Mohd Yaacob:
I think registration of voters should be linked to registration of disabled people, then automatically disabled voters will be identified. The voting process would naturally attract elderly people who usually stayed at home to come out and the Election Commission should train the staff to assist these voters and have wheelchairs in each polling station. It’s all about the information and communication system to allow disabled and elderly people access into the compound.

Janet Ng:
Some blind voters have voiced their opinion of privacy in making their choices. Colin and I fully agree with them. Braille is a must in their paper.

 

For the full story, subscribe to Challenges here

powered by metaPost
Continue Reading
Issues
Sponsored Ads
Privacy Statement Terms Of Use Copyright 2011 by Challengesmag.com Powered by: CMS Web Design